Wegener Granulomatosis
Who to Contact
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Vasculitis / Wegener's Granulomatosis Association
P.O. Box 28660
Kansas City, Missouri 64188-8660
800-277-9474
Phone/Fax 816-436-8211
Web: http://www.wgassociation.org/
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Wegener's Granulomatosis Association offers comfort and support to WG patients
and families through education, awareness and research.
The mission of WGA is to: Establish rapport with all known WG patients, to
alleviate the isolation of having an uncommon, life-threatening disease;
Assist WG patients and their families with clinical information and coping
strategies, to help them gain a strong, positive outlook; Create greater
awareness about WG within the medical community, as well as the general public;
Support research efforts for the cause, treatment and cure for WG; To support WG
patients and their families through education, awareness, and research.
Where to Go to Chat with Others
- WG Discussion
For support and general discussion of Wegener's Granulomatosis. For the care partners, family, friends, and for those who have WG.
- savvy
Savvy list provides info-resources, support and contact opportunities on the rare, inflammatory autoimmune illnesses. - Members present Churg-Strauss,Wegener's granulomatosis, Henoch-Schoenlein, Polyarteritis Nodosa, giant-cell or temporal arteritis, takayasu, polyangiitis, Microscopic polyangiitis, leukocytoclastic Vasculitis, and related auto immune, secondary and overlapping syndromes, such as Lupus, Cushing's, osteoporosis and other orphan, auto-immune illnesses.
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