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The National Urea Cycle Disorders Foundation is a non-profit organization dedicated to the identification, treatment and cure of urea cycle disorders. Our organization was formed in 1988 by a handful of parents whose children were affected in order to provide a primary resource for information and education, and to support and stimulate research on urea cycle disorders. The Foundation is operated and supported by the volunteer efforts of families with children suffering from UCDs. Our organization is a supportive network of families, friends, and medical professionals.
The goals of our organization are to provide guidance and information to families and others affected by urea cycle disorders; educate medical personnel on the diagnosis and treatment of urea cycle disorders; network families together for support; increase public awareness on the existence of these disorders to facilitate early diagnosis and lower mortality rates; educate legislators on the needs of families affected by this disorder; to support and stimulate research activities, and above all, to find a cure.