Turner Syndrome

Who to Contact
Where to Go to Chat with Others
Personal Accounts
Learn More About It
Web Sites
Search Google for "Turner Syndrome"

Who to Contact

Turner Syndrome Society of the United States
14450 TC Jester, Suite 260
Houston TX 77014
800-365-9944 (toll-free)
832-249-9988 (phone)
tssus@turner-syndrome-us.org
http://www.turner-syndrome-us.org/

The Turner Syndrome Society of the United States is a young organization whose membership has quickly grown into the thousands. More than 38 chapters and 18 support groups are active across the country, with many other in the process of organizing.

The Society is a non-profit organization whose mission is to:

• Increase public awareness and understanding of Turner Syndrome;
• Increase understanding of those affected by Turner Syndrome about the condition and its associated problems;
• Provide a forum where those affected by Turner Syndrome can become acquainted with others in similar situations and thereby gain some understanding of how to cope with the problems created by the condition; and
• Work together with medical and health-care professionals to better understand the condition through research and communication of ideas.

The Society works with more than 38 affiliated chapters across the country. Local organizations offer support groups, social activities, education forums and public awareness. A listing of local chapters is available from the Society.

Where to Go to Chat with Others

• Turner Syndrome Forum
  Created to give everyone a place to discuss thier experiences with Turner Syndrome. Come in and join our discussions, meet some new people, and maybe learn something new about Turner Syndrome. Please keep in mind that we have a varied age group and some topics may not be suitable for younger audiences.

• TS Pregnancy
  This group is for expectant parents who are dealing with a diagnosis of Turner Syndrome for their unborn child. It is also a place where other parents who were dx in-utero can share their experiences and advice. A pre-natal dx is often a very scary thing and it is important to share your feelings and help ease the worry that often accompanies a special pregnancy.

• TS Parents3
  A discussion group for parents of children with Turner Syndrome
  

Learn More About It

• What is Turner's Syndrome

• Turner's Syndrome FAQ

• Turner syndrome - Genetics Home Reference
  
  
• MedlinePlus Medical Encyclopedia: Turner syndrome
  
  
• Turner Syndrome from eMedicine
  
  
• Clinical Features of Turner Syndrome
  
  
  

Web Sites

• The Turner Syndrome Society of the United States

• Turner's Syndrome Society of Canada
  
  
• Turner Syndrome Support Society (TSSS) - United Kingdom

Last Updated June 29, 2007 by familyvillage@waisman.wisc.edu
Document Source: http://www.familyvillage.wisc.edu/lib_turn.htm