Myotubular Myopathy

Who to Contact
Where to Go to Chat with Others
Learn More About It
Web Sites
Search Google for "Myotubular Myopathy"

Who to Contact

Myotubular Myopathy Resource Group
2413 Quaker Drive
Texas City, Texas, USA 77590
(409) 945-8569
Web: http://www.mtmrg.org/

Myotubular Myopathy Resource Group facilitates family-to-family; family-to-researcher; physician-to-physician contact for persons with an interest in Myotubular Myopathy. They match affected families with others in their geographical area. The Group occasionally publish a newsletter for affected families.

Where to Go to Chat with Others

• Myotubular Myopathy
  A Rare Disease Support eGroup for People affected by 'Myotubular Myopathy'

Learn More About It

• Myotubular (Centronuclear) Myopathy information from OMIM

• Frequently Asked Questions (FAQs) about Myotubular Myopathy

• What is Centronuclear / Myotubular Myopathy?

• Myotubular Myopathy (MTM or MM)
  Information from MDA.

• Myotubular Myopathy: Centronuclear Myopathy
  Information from Contact a Family - UK
   
• NINDS Congenital Myopathy Information Page
   
• Congenital Myopathies from eMedicine
   

Web Sites

• Myotubular Myopathy Resource Group

• Centronuclear & Myotubular Myopathy Information Point

• The Joshua Frase Foundation

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Last Updated 3/6/07 by familyvillage@waisman.wisc.edu
Document Source: http://www.familyvillage.wisc.edu/lib_myot.htm