Myelin Disorders
Also see: Multiple Sclerosis; Canavan Disease; Krabbe's Disease;
Metachromatic Leukodystrophy; Adrenoleukodystrophy; Lesch-Nyhan Leigh's Disease;
Parkinson's Disease; and Alzheimer's Disease
Who to Contact
-
Organization for Myelin Disorders Research and Support
P.O. Box 54759
Cincinnati, OH 45254-0759
513 -734-6338
E-mail: myelinrs@dot-net.net
This is an international network that was founded in 1996. It provides a communication network among families (and professionals that work with them) who affected by hypomyelination and myelin deficient disorders. It also aims to increase awareness, find causes and treatments, and fund research. In addition, it provides information and referrals, phone support, advocacy, and a newsletter.
Where to Go to Chat with Others
- Myelin-mail
A service for families, friends and professionals dealing with children's myelin related disabilities.
Learn More About It
Web Sites
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Last Updated
3/6/07
by familyvillage@waisman.wisc.edu
Document Source: http://www.familyvillage.wisc.edu/lib_myel.htm
Who to Contact