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Google for "Klippel-Trenaunay Syndrome"
K-T Support Group provides support for K-T Syndrome patients and their families by sharing experiences and information. It provides a clearinghouse for correspondence between members and maintains a list of current medical literature pertaining to K-T Syndrome available to members and professionals.
It publishes the K-T Newsletter every three or four months, the funding covered by donations. It provides a new parent packet, which includes a roster of families/adults in the group, medical articles if requested, and a questionnaire. They are in the process of establishing a reading list and have some books and videos available for the cost of materials plus shipping and handling. Finally, it sponsors a conference every other year in Rochester, Minnesota.