Floating Harbor Syndrome

Who to Contact
Where to Go to Chat with Others
Learn More About It
Web Sites
Search Google for "Floating Harbor Syndrome"

Who to Contact

Floating Harbor Syndrome Support Group
Deana Swanson, Director
1964 Sheffield Road
Harmony, NC 28634
336-492-2641
littleflock@yadtel.net
http://www.floatingharborsyndromesupport.com/

The support group was founded when one mom contacted another mom whose child also had Floating Harbor Syndrome. Our desire is to help others find a diagnosis and to offer solutions that we have found helpful in dealing with our own kids who have this syndrome. We offer a newsletter published 3-4 times a year with articles by other families with Floating Harbor children and adults, phone consultations, and e-mail support with questions and concerns regarding FHS.   We also have medical journal articles available if more information is needed.  

Where to Go to Chat with Others

• Floating Harbor Syndrome Discussion Group
  A group open to anyone interested in sharing information and/or support for persons affected by "Floating Harbor Syndrome."

• Floating Harbor Group
  This group is dedicated to support of parents of children with Floating Harbor Syndrome
   

Learn More About It

• Floating Harbor Syndrome information from OMIM
   

Web Sites

• Floating Harbor Syndrome Support Group of North America

• Floating Harbor Syndrome Contact Group - UK