CHARGE Syndrome

Who to Contact
Where to Go to Chat with Others
Learn More About It
Web Sites
Search Google for "CHARGE Syndrome"

Who to Contact

CHARGE Syndrome Foundation, Inc.
141 Middle Neck Road
Sands Point, NY 11050
516-684-4720
800-442-7604
http://www.chargesyndrome.org/

The mission of the CHARGE Syndrome Foundation is to provide support to individuals with CHARGE syndrome and their families; to gather, develop, maintain and distribute information about CHARGE syndrome; and to promote awareness and research regarding its identification, cause and management. A major activity of the Foundation Office is to provide information and support to more than 400 members composed of both families and professionals – and especially to families with a newly identified child with CHARGE syndrome.  The Foundation makes its publications – including a newsletter and a manual for families – and resources available to families and the professionals who serve these families.  The Foundation maintains contacts with professionals from around the world and supports research on CHARGE.  The major activity of the Foundation is its biennial conference for families and professionals.

Where to Go to Chat with Others

• Charge Syndrome
  A support list for parents, family, caregivers, doctors and therapists, or anyone interested or dealing with a person with CHARGE Syndrome.

• CHARGE Canada
  A support group for families with children who have CHARGE syndrome. A place to look for help and information about CHARGE syndrome.

Learn More About It

• About CHARGE Syndrome
  
  
• What is CHARGE?

• CHARGE Association Information from OMIM

• CHARGE-like Syndrome, X-Linked
   
• CHARGE Syndrome - from eMedicine

Web Sites

• CHARGE Syndrome Foundation

• CHARGE Syndrome Canada
   
• CHARGE Family Support Group - UK