Cornelia de Lange Syndrome

Who to Contact
Where to Go to Chat with Others
Learn More About It
Web Sites
Search Google for "Cornelia de Lange Syndrome"

Who to Contact

The Cornelia de Lange Syndrome Foundation, Inc.
302 West Main Street, #100
Avon, CT 06001
860-676-8166
860-676-8337 - Fax
800-223-8355
Web: http://www.cdlsusa.org/

The Cornelia de Lange Syndrome Foundation is a family support organization which exists to reach out, provide help and offer hope to everyone touched by this genetic condition. Our primary purpose is to offer support on a personal basis and we encourage you to let us know how we can help you and the person in your life with CdLS.

Where to Go to Chat with Others

CDLS-KIDS
An e-mail discussion list for parents, caregivers, extended family, and friends of children with CDLS.
 

Learn More About It

• Facts About Cornelia de Lange Syndrome

• About CDLS
   
• Cornelia de Lange Syndrome - eMedicine
   
• CDLS -Genetics Home Reference

• Cornelia de Lange Syndrome information from OMIM
   
• Education Protocol for Cornelia de Lange Syndrome

Web Sites

• Cornelia de Lange Syndrome Foundation Web Site

• Cornelia de Lange Syndrome - UK
   

• Cornelia de Lange Syndrome - Australasia
• Jessica's Place

• Amanda's Room