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This non-profit 501(C)(3) was formed to raise funds through events and contributions from corporations, foundations, and friends. These funds are then used to accelerate first-rate, international scientific research aimed at finding a cure and improving the lives of all children with Ataxia Telangiectasia.
This organization supports research that will contribute to a model of disease management for A-T, along the lines of those developed for diabetes, cystic fibrosis, PKU, epilepsy, and others. Specifically, The A-T Project supports research towards finding treatments that will prevent, stop or reverse the relentless progression of ataxia-telangiectasia.
The areas of treatment research include nutritional therapies, dietary management, use of cytokines, as well as more conventional drug treatments. It provides parent education, travel funds, equipment and supplies for families to the NIH-funded A-T Clinical Research Center Study at Children's Hospital of Philadelphia (CHOP). It hosts an annual Metabolic Roundtable on A-T; funds the Food Alcohol Project at the University of Texas and the exploratory studies on the A-T mice, alcohol, and inositol; has started an A-T mouse colony at MD Anderson Cancer Center; pays airfares for researchers to attend important research meetings; and funds additional research at CHOP to try to determine exactly where in the A-T cell the myoinositol deficiency lies. The A-T project has also initiated additional research which has been paid for by existing grants to look at abnormalities in the membranes of A-T cells, metabolic studies of A-T patients (at no cost to families) determining individual abnormal metabolic requirements as well as analyzing group findings; signal transduction work on A-T at M.D. Anderson Cancer Center and more. It also fields many calls from parents, therapists, educators, etc. and sends out educational materials.
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