Arthrogryposis Multiplex Congenita

Who to Contact
Where to Go to Chat with Others
Learn More About It
Web Sites
Search Google for "Arthrogryposis Multiplex Congenita"

Who to Contact

Avenues-Arthrogryposis Multiplex Congenita
PO Box 5192
Sonora, California, USA 95370
http://www.avenuesforamc.com

Avenues is a national support group that provides education and networking for parents and medical professionals concerned with Arthrogryposis. They have local chapters, with a directory available, and will provide parent-to-parent matching. The Avenues site contains archived newsletters and a an online brochure, "What is Arthrogryposis?" This is offered in English and Spanish. Additionally, they have a new parent packet, that includes the newsletter, and brochure.

Avenues has a bibliography of abstracts that are available to members and audio Cassettes for distribution. They collect information on physicians and researchers who treat/study the condition and disseminate this information to its membership. They also offer a resource packet that includes interested doctors, therapists, families, pen pals, support groups and clinics.

Where to Go to Chat with Others

• Avenues
  The Avenues mailing list was created to enable discussion about Arthrogryposis and any issue related to Arthrogryposis. Anyone who is interested in discussing this is welcome to join in.

• Adults With Arthrogryposis
  A place where adults affected with Arthrogryposis can discuss & share ideas.
   
• Arthrogryposis Support
  A positive support group where people dealing with the muscle disorder Arthrogryposis gather to share & support each other.
   
• AMC Adults
  This is a mailing list for adults with arthrogryposis to come together and communicate with others affected with amc. Discussions should not be limited to just talking about amc, but amc should be the common bond amongst the members. Teens and parents of children with amc are invited to join, however, discussions may reach a mature level.

Learn More About It

• What is Arthrogryposis?
   
• ¿Qué causa la Artrogriposis?
   
• Arthrogryposis Multiplex Congenita from eMedicine
   
• Arthrogryposis Multiplex Congenita from OMIM

• Arthrogryposis Multiplex Congenita, Neurogenic Type from OMIM

• Your child has been diagnosed with Arthrogryposis

Web Sites

• Avenues Web Site
  A National Support Group for Arthrogryposis Multiplex Congenita
   
• AMC Support
   
• Jamie-Lee's Arthrogryposis Multiplex Congenita Page