Who to Contact
World Arnold Chiari Malformation (ACM) Association
31 Newtown Woods Road
Newtown Square PA 19073
Staffed by volunteers, the World Arnold Chiari Malformation Association is committed to providing support, current information, and understanding to those
affected by the Arnold Chiari malformation and syringomyelia. It is also our goal to raise the awareness of, and educate the medical community as to
the complex nature of this disease and how it affects the lives of those who have it. With the help of our members from around the world we hope to be
able to provide further research into the areas of symptoms, diagnosis, treatment and outcomes related to ACM and syringomyelia. We recognize the importance
of linking patients, specialists, and researchers from around the world to improve our understanding of this disease and are committed to helping establish
WACMA chapters across the globe.
Where to Go to Network with Others
- Chiari - The World ACM Association Support Group
We are a group for and about those who suffer from Chiari Malformations with or without syringomyelia/syrinx. We offer information and support for those who are dealing with or working with this complex condition. This is the place to discuss the various aspects of the disease, diagnosis and treatment.
- Wacma Kids
We are a group for kids and young adults who have been diagnosed with Chiari Malformations and who may or may not have other related disorders. We talk about anything and everything here. From diagnoses and symptoms, to surgery and going back to school. We hope that you'll find it a wonderful place to get accurate information and support from other young Chiarians. Be prepared to make lots of new friends.
- WACMA parents
This group is a part of the World Arnold Chiari Malformation Association. It is intended to be a support and information site for parents of Chiari Children. Please stay on topic and share your questions and answers freely.
- Chiari Connection International
Chiari Connection International (CCI) was created for those who suffer from Arnold Chiari Malformation and related disorders.
Learn More About It