Arnold-Chiari Malformation

Who to Contact
Where to Go to Chat with Others
Learn More About It
Web Sites
Search Google for "Arnold-Chiari Malformation"

Who to Contact

World Arnold Chiari Malformation (ACM) Association
31 Newtown Woods Road
Newtown Square PA 19073
610-353-4737 (phone)
E-mail: chip@pressenter.com
Web: http://www.wacma.com/

Staffed by volunteers, the World Arnold Chiari Malformation Association is committed to providing support, current information, and understanding to those affected by the Arnold Chiari malformation and syringomyelia. It is also our goal to raise the awareness of, and educate the medical community as to the complex nature of this disease and how it affects the lives of those who have it. With the help of our members from around the world we hope to be able to provide further research into the areas of symptoms, diagnosis, treatment and outcomes related to ACM and syringomyelia. We recognize the importance of linking patients, specialists, and researchers from around the world to improve our understanding of this disease and are committed to helping establish WACMA chapters across the globe.

Where to Go to Chat with Others

• Chiari - The World ACM Association Support Group
  We are a group for and about those who suffer from Chiari Malformations with or without syringomyelia/syrinx. We offer information and support for those who are dealing with or working with this complex condition. This is the place to discuss the various aspects of the disease, diagnosis and treatment.

• Chiari Malformation Information
  A list devoted to medical information and support for people suffering from/affected by Arnold Chiari Malformation (ACM).

• Wacma Kids
  We are a group for kids and young adults who have been diagnosed with Chiari Malformations and who may or may not have other related disorders. We talk about anything and everything here. From diagnoses and symptoms, to surgery and going back to school. We hope that you'll find it a wonderful place to get accurate information and support from other young Chiarians. Be prepared to make lots of new friends.

Learn More About It

• Chiari Malformation FAQ

• Symptom Alleviation Methods

• Arnold Chiari Malformation information from Columbia-Presbyterian Medical Center

• Chiari Malformation Information Page
  From the National Institute of Neurological Disorders and Stroke

Web Sites

• World Arnold Chiari Malformation Association Web Site

• Chiari Malformation Information Page

• The Chiari Institute