Anencephaly

Who to Contact
Where to Go to Chat with Others
Learn More About It
Personal Accounts
Web Sites
Search Google for "Anencephaly"

Who to Contact:

Anencephaly Support Foundation
30827 Sifton
Spring, Texas 77386
(888) 206-7526
Email: asf@asfhelp.com
Web: http://www.asfhelp.com/ASF_files/asf_home.htm

Our support group consists of families who have had a baby born with anencephaly. All of us chose to continue our pregnancies in the face of this devastating diagnosis. Our purpose is to help parents who wish to continue these pregnancies, and help examine the reasons why we believe carrying a child with anencephaly can be a fulfilling decision. We're here to share some personal stories, medical and causation information, support group resources, and other information.

Where to Go to Chat with Others

• Anencephaly
  This is was established for family members, friends, educators and medical professionals interested in sharing information and/or support for parents of affected children.

• Blessings from Above
  A Christian based support club for parents newly diagnosed and carrying anencephalic babies, or who have carried anencephalic babies to term.

Learn More About It

• NINDS Anencephaly Information Page

• Management of a Pregnancy With an Anencephalic Baby

• LLUMC Legacy: Daring to Care: Chapter Four: Anencephalic Infant Donor Protocol

Personal Accounts

• Mary Elizabeth Karg

• Jessicas Journey
  A parent's personal experience, relating her daughter's story.

• The story of Loren Joseph

• Michaela's Hope

• A Site for Anencephaly and Anencephalic Angels

Web Sites

• Anencephaly Support Foundation

• Anencephaly Net
  Anencephaly Support and Information

• Anencephaly Information

• Ten Perfect Fingers

• Centering Corporation
  "We are here for grieving people and those who care for and love them. We will provide the best grief literature possible. We will develop needed books and provide caring workshops."