Alpha-1 Antitrypsin Deficiency

Who to Contact
Where to Go to Chat with Others
Learn More About It
Web Sites
Search Google for "Alpha-1 Antitrypsin Deficiency"

Who to Contact

Alpha-1 Association
275 West Street, Suite 210
Annapolis, Maryland 21401
(410) 216-6916
(800) 521-3025
fax (410) 216-6983
info@alpha1.org

http://www.alpha1.org

The mission of this association is to improve, through support, education, and research, the quality of life of those affected by alpha1-antitrypsin deficiency.

Available services include: offering support and education to patients with A1AD, the general public, and the medical community; acting as a clearinghouse of information to assist healthcare professionals and individuals with A1AD; acting as an advocate for people with A1AD; and aiding in support of research of A1AD.

Where to Go to Chat with Others

• Alpha1 Lungs and Life
  The Alpha-1 Lungs & Life Support E Mail List is daily sharing among lung-affected Alphas, caregivers, health professionals, etc. using emails to communicate with the entire group at once. It is a powerful tool for support and education concerning Alpha-1 Antitrypsin Deficiency Disorder.

Learn More About It

• Alpha-1-antitrypsin Deficiency - A Simplified Description
  From the Alpha-1 Association

• Understanding Alpha-1 Antitrypsin Deficiency
  Medline Plus
   
• Alpha-1 Antitrypsin Deficiency
  Cleveland Clinic
   
• Alpha-1 antitrypsin deficiency
  Genetics Home Reference

Web Sites

• Alpha One Foundation

• Alpha-1 Antitrypsin Deficiency National Association
  

• AlphaNet Online

• Texas Alpha-1 Resource Support Group

• Alpha1 Canadian Registry

• Spiderspun Alpha1 Web Site