Romberg Syndrome / Parry-Romberg's Syndrome

Who to Contact
Where to Go to Chat with Others
Learn More About It
Web Sites
Search Google for "Romberg Syndrome"

Who to Contact

Parry Romberg Foundation
526 14th Street
Windsor, CO 80550
E-mail: info@parryrombergfoundation.org

The Parry Romberg Foundation is a nonprofit organization whose mission is to develop and provide resources for research, advocacy, education, and support for persons with Parry Romberg Syndrome, their families, doctors, and communities.

The Foundation will achieve this mission by raising financial support for promising research and by bringing awareness of Parry Romberg Syndrome to the media, policy makers, and the medical community. Funding for these activities will come from private and public grants and corporate and individual donors.

Where to Go to Chat with Others

• Rombergs
  This mailing list consists of the members of the Romberg's Connection, which is a support group for people with Rombergs Syndrome.

Learn More About It

• Parry-Romberg Syndrome Information Page
  National Institute of Neurological Disorders and Stroke

• An Introduction to Parry Romberg Syndrome

• Progressive Hemifacial Atrophy from OMIM

Web Sites

• The Rombergs Connection
  
  
• Parry Romberg Foundation

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Last Updated June 19, 2007 by familyvillage@waisman.wisc.edu
Document Source: http://www.familyvillage.wisc.edu/lib_rombs.html